i have always worn my heart on my sleeve kinda gal so when the time has come for me to make a major health decision wearing my intestine on my abdomen just seemed to -- come natural. most people if asked would never know i have a bowel disease other than the thinner i would get while really flaring they would comment
oh my you look sooo goood! now that is sad girls..just sad. they didn't know though that i was sick. our society just thinks the thinner the better
i have battled this beast for almost 10 years. i have severe UC/Crohn's. they are both auto immune bowel diseases NOT the same as IBS or diverticulitis. the main difference is that with UC..it is the large intestine/rectum and with Crohn's it can be the whole digestive tract. My GI .. Dr V whom i LOVE to pieces has tried everything and long story short..FAIL
so here is how my life cycle looks prednisone dependent.. cycle of prednisone, taper, get sick, prednisone, taper, get sick..and so it was easy to think "oh, i wasn't living on pred but in reality i was and still not with any quality of life.
it has been just about 6 months since my last hospital stay. so about every six months i am really bad again. i have lost 5 works days this week and roughly i loose 2-3 hours a day toilet sitting. i know right? thank heavens for iphones pinterest & ig
after the last stay i knew i needed to make a decision .. well i thought i HAD but then after weeks of medicines i felt my "normal "self and thought i will eliminate wheat...yada yada..to see if". NOPE same and i am cycling back down
SIDE NOTE: i love being wheat free that i am keeping the lifestyle! i am continuing on in the eating because after i do have surgery i can see it just being really good for my body and soul.
i have such a heart full of ideas for our business..and if i don't just get this thing done i will continue to have hard times that put me out of commission for weeks and that is no fun for me or for my customers PLUS the risk of colon cancer for me..with the polyps they always remove etc. is sky high!
cancer or no large intestine....kinda puts it in perspective huh?
my surgery is scheduled for April 29. that should give me enough healing time to be good for may 18-22 graduation festivities! ( my fourth kiddo graduates high school ) SUMMER and the holidays! last year just was miserable for us all
when it is all finished, you will discover it was never random
i am working right now on scheduling all of our sign orders we have at the moment to have things prepped in advance. i may close the shop for a couple of weeks again soon. we will take care of everybody the very best we can. it is a learning curve but i have the absolute best customers EVER.
nikki is coming to work with me full time!! i can't tell you what that will do..how that will change things. her last day is may 2 so once my several weeks of recovery are over...we both can rock and roll!
and YOU...you know who YOU's are that have been praying with me. i know some of you i was talking to when i was in the hospital all of these times. it never EVER goes unnoticed. ever!
well...i have meds for pain now so hopefully i can hold out till the 29th. honestly--there are moments that i am not sure but it is what it is. i will do the best i can...after all this is my STORY that is being written and it is about to be cracked wide open
---------its my party
it is my birthday FRIDAY..so stop back by for some its my party FUN ok? we will share a cupcake..or two